When Your Child Has Addison Disease

Your child has been diagnosed with Addison disease. This occurs when the adrenal glands don’t make enough of the hormone cortisol. In some cases, the adrenal glands also don’t make enough of the hormone aldosterone. The disease is also called adrenal insufficiency or hypocortisolism. A complication of this disease is called an Addisonian crisis. Here's what you need to know about caring for your child.

Medicine instructions

  • Make sure your child takes all medicines for this disease exactly as directed by the healthcare provider. Your child will need to take replacement hormones for the rest of his or her life. The doses will likely increase as the child grows.

  • Carry a steroid injection kit for emergencies as directed. Your child will need an emergency steroid (hydrocortisone) shot whenever he or she is vomiting, unable to drink, or has a serious accident.

  • The steroid dose needs to be doubled or tripled if he or she is injured or becomes seriously ill. Ask your healthcare provider about when and why your child would need a double or triple dose of steroid. Make sure your healthcare provider gives you clear written instructions on how to give the extra hydrocortisone for stress.

  • Get your child a medical ID bracelet that says, “Addison disease: needs steroid medicine daily.” Make sure your child wears the bracelet at all times. Consider attaching the tag on a sturdier chain than the one it came with. If your child tends to wear the tag in another manner, you can try the tag on a necklace, anklet, or even as a belt charm, if it will help your child to consistently wear it.

  • Before your child has any type of procedure, tell the healthcare provider that your child has Addison disease. Your child’s steroid dose may need to be increased.

Preventing dehydration

It's very important for your child to not become dehydrated. To do this:

  • Increase your child’s salt intake if the healthcare provider advises you to. Examples of salty foods are canned soups and potato chips. Use table salt where needed.

  • Treat minor flare-ups by making sure your child drinks more fluids and eats more salty foods.

Preventing Addisonian crisis

Addisonian crisis can occur if your child doesn’t have enough steroid hormone during stress or is dehydrated. To prevent an Addisonian crisis:

  • Make sure your child takes his or her medicine as directed.

  • Make sure your child drinks enough fluids. Don’t let your child become dehydrated.

  • Keep your child away from large crowds during cold and flu season.

  • Teach your child good hygiene, such as proper handwashing.

  • Keep your child’s vaccines up to date. Get your child the flu shot (vaccine) every year.

Alerting your child’s healthcare providers

Tell all of your child’s healthcare providers that he or she has Addison disease. This includes dentists, surgeons, and any specialists.

Follow-up care

Make a follow-up appointment as directed by our staff. Keep regular follow-up appointments with your child’s healthcare provider or hormone specialist (pediatric endocrinologist).

When to call your child's healthcare provider 

Call the healthcare provider right away if your child has any of the below:

  • Tiredness or weakness

  • Loss of appetite or weight loss

  • Dizziness when standing up

  • Muscle aches

  • Nausea, vomiting, or diarrhea

  • Sharp pain in the lower back, abdomen, or legs

  • Any infection

  • A fever of 100.4°F (38°C) or higher, or as advised by the healthcare provider